Upcoming Conferences, Webinars, Studies
MORE CONFERENCES and TRAINING OPPORTUNITIES STATEWIDE MAY BE FOUND AT:
Baylor Research: Social Stories Survey
Baylor Autism Resource Center is conducting a survey among parents who use Social Stories(TM) with their children.
The survey specifically seeks responses from parents who currently use Social Stories™ with their child with an autism spectrum
disorder. The survey should take no more than 10 minutes to complete.
If you use Social Stories™ with your child and would like to participate in the following survey, please click on the link below.
Baylor Research: Parents with Children Ages 5-12 for Parental Stress Study
Parents of children diagnosed with an Autism Spectrum Disorder, Type 1 Diabetes, as well as parents of children with no
diagnosis, are being asked to take part in an online survey.
Parents who complete the survey can participate in a drawing for one of three $50 gift cards
to Amazon.com; those who refer others to the survey get their name added into the drawing
for each person they refer.
The study on stress and coping strategies among parents of children ages 5-12 is being conducted by
Crystal Lee, a doctoral candidate in clinical psychology at Baylor University.
To participate in the survey, click here.
Baylor College of Medicine Autism Clinical Research:
There are several autism studies going on at the Houston Baylor College of Medicine. Participants do not necessarily need to
live in the Houston area. One example:
Carnitine Production in Children with Autism Spectrum Disorder - Researchers at Baylor College of Medicine have
discovered a genetic condition called TMLHE deficiency, which is present in about 1 in 200 boys with ASD. TMLHE deficiency
causes a loss of the body's ability to produce carnitine. Abnormalities of carnitine metabolism may be important in some autism
cases, and this research could lead to new treatment and prevention options. Click on the link to look over participation
Special Needs Resources in the Heart of Central Texas: Where are the Gaps?
Does your area have anyone offering equine (horse) therapy? Swimming for special needs? Music classes?
Is it easy, or difficult, to find a medical specialist for your special-needs family member where you live?
This online survey (https://www.surveymonkey.com/s/SpecialNeedsResources) will help identify resource
needs throughout the Heart of Central Texas area, and highlight opportunities for growth. Please help towards building a better
community for all of us!
Parents of Adults with Autism Spectrum Disorder (ASD): Participate in online discussion
Dr. Kathryn Drager, of the Department of Communication Sciences and Disorders at Penn State University and her assistant
Laura Dengler, a Ph.D. student, are working on an important study. They would like to learn about the experience of being a
parent of an adult with autism spectrum disorder (ASD). They are looking for parents of adolescents and adults with ASD to
participate in an online discussion group. If you are a parent of an adult with ASD, please consider participating. For more
information, please e-mail Laura Dengler at email@example.com.
The Johnson Center Bright Eyes Program: opportunity for families!
The Johnson Center (http://www.johnson-center.org/) in Austin is providing 50 families enrollment in the Bright Eyes
Program, which includes six months of fully supported medical, dietetic, and nutritional care, along with appropriate
diagnostics, family support, and parent training. Services will be provided by a collaborative team made up of a Certified
Clinical Nutritionist, a Registered Dietitian, a Physician, a Registered Nurse, a Psychologist, a Board Certified Behavior Analyst,
a Certified Child Life Specialist, and additional support staff. Over the course of six months, selected participants will have
frequent evaluations and assessments, and will receive a complete plan of care with the support necessary to successfully
implement appropriate intervention and seek appropriate services. Participants in this program are able to secure services with
nothing more than a small monthly co-pay.
Child must be between the ages of 18 months and 13 years old;
Child must have a confirmed ASD diagnosis;
Family must meet all criteria and be willing to commit to specific program requirements;
Families must be willing to travel to Austin for one initial visit (the Johnson Center staff may be able to help with travel
programs if this is a barrier to participation).
For an application please email firstname.lastname@example.org or call 512.732.8400.
Dietary, Biomarker, Bone Density Studies
The Johnson Center in Austin is conducting a several clinical studies for autism.
BULLYING and AUTISM: Interactive Autism Network
The Interactive Autism Network (IAN) Research project is launching a survey focused on bullying and children with autism
spectrum disorders (ASD). The Bullying and School Experiences of Children with ASD Survey will collect information on a variety
of bullying situations from a large number of families to explore the extent of these problems in the lives of children with ASD.
Researchers need information from families of children with a wide range of experiences in order to make comparisons and
evaluate risk factors. For more information and/or to participate, go to
More information and resources about bullying can be found at
PARENTING RESEARCH STUDY
PURPOSE OF THE STUDY:
The purpose of this study is to gain a greater understanding of temperament-based parental approach to addressing the needs
of each child. The research is comprised of three different phases in which parents will be asked to complete several surveys.
Parents will be matched according to set criteria established for the research study. They will then be assigned to two groups.
Some parents will be asked to implement specific parental strategies to address the needs of their child. This can take place in
their home and community environment. The research will be conducted through the mail. The research will be conducted
through the mail and the researcher will send any necessary pre paid postage returned forms. The first and third phase of the
research study should take approximately forty-five minutes each and the ten minute commitment each week for two months.
Parent or primary caregiver must be above the age of 18 years old and have a child between the ages of six to twelve years of
age who was diagnosed by a psychologist or medical doctor as having Autism Spectrum Disorder.
Parent must be above the age of 18 years old and have a child between the ages of six to twelve years old who does not have
any disabilities as classified by IDEA (2004). It includes autism, Deaf-blindness, deafness, emotional disturbance, hearing
impairment, mental retardation, multiple disabilities, orthopedic impairment, other health impairments, specific learning disability,
peech or language impairment, traumatic brain injury, and a visual impairment, including blindness.
Once results have been obtained, a thank you letter will be mailed to all the parents as well as $5.00 gift card to Barnes and
Noble as an appreciation for participation in the study!
INTERESTED IN LEARNING MORE:If you are interested in learning more about this research study, please contact the
Principal Investigator, Tara Malka, M.A., Ed.M.
IRB #TC: 10-116CR2
SIBscape seeks input from families and siblings of people with developmental disabilities
SIBscape (www.sibscape.org), is an organization for siblings of people with developmental disabilities, and their families. They have created
surveys to assist them as they work to increase and improve programs and services for families. One survey is only for siblings; the second is
for any family member.
Sibling Survey: http://www.sibscape.org/sibling_survey/, to help in the development of programs for sibings.
Educational Program Survey: http://www.allourideas.org/sibscape_education to help gather information on which topics would be most helpful.
University of New Mexico Center for Development & Disability
Ongoing webinars and archived programs available online include: Overview of autism, Educational eligibility vs
Medical diagnosis of autism, etc. Link to calendar: http://cdd.unm.edu/swan/calendar/2011-2012TrainingCalendar.pdf
Link to UNM CDD: http://cdd.unm.edu/autism/webinars/archiveRegistration.asp
PLEASE SEND INFORMATION ON ANY CONFERENCES, STUDIES, ETC!
CLICK HERE OR email email@example.com
Updated 11/30 "Refresh" for
Heart of Texas Autism Network
families and by ASD
to inspire a higher
quality of life .
the help people with
ASD live, work and
participate as fully and
possible in our society.
There is no charge for
Other activities and
and participation in the
community for all people
affected by ASD.
Free qualified child
care is usally
with autism spectrum
disorders and their
For more information contact us
at firstname.lastname@example.org or use
the CONTACT US page on this
HOTAN is a 501(c)(3)
and donations are
For a free HOTAN
brochure PDF file
HOTAN seeks people
who speak Spanish to
help the parents of
ASD persons whose
primary language is
Those qualified and
able to help should
contact HOTAN through
our Contact Us page.
HOTAN is seeking
volunteers to organize and
execute various programs,
activities and functions it
supports. HOTAN needs
help with the annual Walk for
Autism and other
(monthly meetings, supper
clubs and other
informational and social
newsletters and publicity).